My day to day life with my little trooper and our daily battle and treatment of MCAD

Wednesday, March 23, 2011

A years worth of updating in one post

I decided to check out my own blog for the first time in almost a year. I had given up on it a bit last summer because really, things were not all that exciting. After reading some comments and having someone asking if it gets easier I wanted to update and show you that YES! things are getting easier.

Parker had his first birthday and I kind of lost it. I'm not sure if it was the birth control I started, the years worth of exhaustion, or that the first year was over and I had wished it away for a full nights sleep. For few months I was kind of depressed. I napped a lot and didn't go out much. I think part of it was to do with the first year being over. By his birthday he was learning to walk, saying a few words here and there and was past the infant stage. In my eyes, he was past the scariest part. I was so happy we'd made it and still so sad my baby was 1.

I am very very lucky. Parker didn't get sick very often. A cold here and a very mild fever there. I would feed every 2 hours and monitor him closely. But we didn't end up at the hospital until February. 7 months after his birthday and 10 months since the last time he was there.

We were admitted on Feb 24. He had a cold a week before and was getting better. Then one morning he had a very high fever. He was still eating a little bit every couple hours. Then I got sick. REALLY sick. I couldn't believe how awful I felt. I thought Parker must feel just as awful. After 2 days of being sick and Parker just not getting any better and he still had a fever I decide to take him in for my own benefit.... more then 2 hours of sleep. He was put on an IV and later that day he was given and NG tube (feeding tube). The first night was ok because we slept really hard. In 24 hours we slept for about 20 hours.. only waking up when his vitals needed to be checked. Turns out he had influenza. I thought oh that's not that bad, but it is. It takes a long time to go away. When babies, small children and the elderly get it it can be very serious. It can cause pneumonia and can even be fatal. There were no antibiotics he could take so we just had to ride it out. I think next year I'll get our family the flu shot.

Parker is taking corn starch now in his bed time bottles. He still isn't sleeping the entire night through. He gets up once or twice still. I think after a year of sleeping 4-5 hours your body gets used to it. I still don't think I've slept the whole night through yet, unless you count the hospital.

Anyways I wont ramble on too much. Parker is healthy and as happy as ever. He is walking and talking and generally a pretty busy kid. He loves playing with his brother and playing outside.

Things really are getting easier. When I found out he had MCAD I was scared to death. I thought this was going to be so hard and if the rest of his life was like the first few months there was no way we were going to make it. Pretty dramatic, I know. But it really has gotten easier. I've been so lucky that he hasn't get sick once a month. Once he starts sleeping thought the night things will be almost normal.Add Image